Saturday, July 30, 2022

LGBTQ community confronts 'excruciating' monkeypox -- and its stigma

Paula RAMON
Fri, July 29, 2022 


The spread of the monkeypox virus and its prevalence among gay men has raised widespread fear, growing anger and a number of uncomfortable questions for a community still scarred by the early years of the HIV/AIDS epidemic.

While there is still widespread public confusion about the precise nature and spread of the disease, it is a fact that the overwhelming majority of monkeypox patients in the United States identify as LGBTQ and are male.

For some, the situation evokes dark parallels with the 1980s, when HIV/AIDS was stigmatized as a "gay plague," hospitals and funeral homes turned away patients and victims, and White House officials either cracked homophobic jokes or simply ignored the new virus.

At a meeting this week in West Hollywood, a hub for Los Angeles' LGBTQ community, actor Matt Ford received a standing ovation as he spoke openly about the "excruciating" symptoms he had endured when he contracted the disease -- an experience he has also shared online.

Afterward, he told AFP that he "definitely had doubts before coming out publicly about my experience."

"I was pretty on the fence prior to tweeting due to the potential for social stigma and people being cruel -- especially on the internet -- but thankfully the response was mostly positive," he said.

What pushed Ford to speak out was the urgent need to warn others about the disease in the days leading up to West Hollywood's major LGBTQ Pride celebrations.

While monkeypox has not so far been labelled a sexually transmitted infection (STI) and can infect anyone, the group currently most affected is men who have sex with men.

Spreading through skin-to-skin contact, the disease is most often transmitted through sexual activity, and the World Health Organization this week urged gay and bisexual men to limit their sexual partners.

"At the end of the day, it's not homophobic to say that certain groups are disproportionately impacted by the monkeypox outbreak," said Grant Roth, who is part of a network that collects information about the disease in New York.

"And right now it's about the queer community."

- 'Blame' -

While the notion of monkeypox affecting mainly the LGBTQ community raises fear of homophobia and stigmatization, it has also prompted anger that the US government is not taking the disease seriously enough.

A lack of available vaccines to meet demand has caused outrage across a country where some 4,900 cases have been detected -- more than any other nation.

On Thursday, San Francisco and New York state declared public health emergencies in order to bolster efforts to control the spread of monkeypox.

The US health department announced plans to allocate an additional 786,000 vaccine doses, which will take supply above one million -- but for many, the response has come too late.

"Why is the government not acting as fast as it should?" asked Jorge Reyes Salinas of Equality California, a coalition of LGTBQ activists and organizations.

"We need more resources, and we need more attention to this issue. It's not just an LGBTQ concern. It should not be painted that way."

The way the health emergency is being handled revives painful memories, he said.

"I think that's always gonna be a risk in the back of our minds because, again, of the HIV and AIDS pandemic."

Roth said a lot of "blame" has been placed on men who have sex with men, when in reality the government should have "secured the vaccines sooner, and made testing more widely available."
- 'Afraid' -

At the West Hollywood meeting Andrea Kim, director of Los Angeles County's vaccine program, said a mobile monkeypox immunization unit is due to arrive "soon."

Other speakers outlined measures that the community can take to protect itself until then.

Dan Wohlfeiler, who has worked with HIV and STI prevention for more than three decades, urged people to use the "lessons of Covid" to address the spread by temporarily narrowing social circles and creating bubbles, including for sexual activity.

"This event is yet another traumatic time for a lot of us. Hopefully vaccine access will significantly increase in the next six to eight weeks," he said.

"The more steps that we take as individuals starting now to protect ourselves and our partners, the sooner we can end this outbreak."

"I'm proud to belong to this city and to have this opportunity" to learn more about the disease, said a Latina trans woman after the meeting, who asked not to be identified.

"But how can we not be afraid, if historically we have been discriminated against?" she said.

"I hope this time it will be different."

burs-pr-amz/bfm

Treating monkeypox as an LGBTQ disease contributes to stigma and spread, say advocates

Gerard Yetman, seen in a file photo, says some media coverage of monkeypox has reminded him of the HIV/AIDS crisis. (CBC - image credit)

CBC
Fri, July 29, 2022

After Newfoundland and Labrador Public Health announced the first case of monkeypox in the province, some advocates are worried about potential stigma attached to the illness — especially for members of the LGBTQ community.

Gerard Yetman, executive director of the AIDS Committee of Newfoundland and Labrador, said some media coverage of monkeypox in Canada has reminded him of the stigma attached to HIV and AIDS in the 1980s and 1990s.

"It reminded me of that because basically, once again, you know, HIV and AIDS was portrayed as a gay men's disease," he said Thursday.

During the HIV/AIDS crisis, people in LGBTQ communities across Canada faced discrimination, isolation and even violence because of the disease.

"A lot of people lost their housing and lost jobs, you know? Were really displaced within our society," Yetman said.

Dr. Theresa Tam, Canada's chief public health officer, said Wednesday most cases in Canada have been reported in men who have sex with men; however, she cautioned against associating the disease with the LGBTQ community, noting that anyone can get it.

Yetman said he wants Public Health and the media to avoid past mistakes.

"I think Public Health really needs to do some very strong messaging and to ensure that people are aware that no matter what sexuality you are and no matter what gender you are, it has nothing to do with how you can contract monkeypox," he said.

Striking a balance

Newfoundland and Labrador was the sixth province in Canada to report a probable case of monkeypox, which primarily spreads through prolonged close contact with an infected person.

Newfoundland and Labrador's acting Chief Medical Officer of Health, Dr. Rosann Seviour, said Thursday that Public Health is being careful to protect the identity of anyone who gets monkeypox in order to avoid the public shaming that occurred at the beginning of the COVID-19 pandemic in Newfoundland and Labrador.


Danny Arsenault/CBC

Symptoms include a fever, aches and pains, a rash and lesions. Seviour said the disease usually doesn't require hospitalization, but can be extremely painful. If a person has symptoms of monkeypox they should self-isolate and call their physician or 811, she said.

Charlie Murphy, executive director of LGBTQ organization Quadrangle, said he believes Public Health is striking the right balance in its messaging so far but wants to see more resources in place — like vaccination clinics.

"This is the first initial case, but it's always better to be ahead of that curve," he said.

Seviour said Thursday that close contacts of monkeypox cases are being offered vaccines, but the provinc
e isn't yet setting up vaccine clinics like the ones seen in other areas, like Montreal.


Submitted by Nikki Baldwin

Nikki Baldwin, executive director of Planned Parenthood N.L., emphasized the disease is not spread solely through sexual contact, and is not specific to the LGBTQ community or gay or bisexual men.

"The fact that it is spreading through men who primarily have sex with men is because that's the community it's in. It's community spread. It's spread person to person with close contact," she said.

She said focusing on the LGBTQ community in public health messaging or education could leave the false impression that people outside that community can't get monkeypox.

"They may not recognize their symptoms or isolate properly, and that could increase the spread and that could be really detrimental to the whole public," she said.

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